Your Experience is a Gift

For questions about PrEP in general, and for a Chicago/Illinois specific provider listing, visit www.PrEP4love.com.




Tuesday, March 5, 2013

I began taking Truvada on July 19, 2011, and haven’t missed a dose since


I learned as much as I possibly could, gathered up a stack of information, and decided this could be the right prevention strategy for me.


by Damon L. Jacobs
New York City

It was one thing to come out about my decision to take PrEP. After all, I have worked most of the past twenty years as a psychotherapist and safe sex educator in both New York City and San Francisco, and have discussed the complexities of condoms and risk-reduction with hundreds of individuals and couples, both HIV positive and negative.

But it wasn’t until I was sitting on the Huffington Post Live set with a surprisingly large camera pointed at my face that I began to panic: “Are you really going to talk about barebacking for the whole world to see? Do you really want everyone to ask if you’re taking loads from positive guys? Won’t this ruin your professional career and reputation?”

Believe me, I understand the importance of condoms.

My early education and training in Psychology took place in the California Bay Area during the early-mid 1990s. That was a time when loving people with HIV/AIDS meant losing people with HIV/AIDS. You would see friends, acquaintances, lovers...and then you wouldn’t. I was one of those volunteers that stood on the corner of Sanchez & Market giving out condoms, lube, and pins that said “100%.” The implication was that we could end HIV by 2000 if everyone used condoms “100%” of the time.

It was estimated then that half the men living in San Francisco carried HIV, so I had been prepared statistically to be fucked at some point by someone positive, knowingly or not. Instead of hiding from that reality, I learned the facts. Condoms, if used correctly, would protect me about 98% of the time. I was comfortable with a 2% margin of risk and set out to have a satisfying and healthy sex life.

Flash forward twenty years. In early 2011, I found myself newly single after the end of a six year relationship.

I was turning 40, and experiencing a loss of physical sensation down there, both as a top and a bottom. I was also finding that, unlike the 1990s, new partners didn’t want to use condoms. And to be honest, I didn’t want them to use condoms either! I found myself having more and more slips and near-misses, where condoms were only partially being used. I was, to put it clinically, becoming “very high risk.”

By happenstance I went to a forum at Gay Men’s Health Crisis where I learned about this new medication that could reduce one’s risk for becoming HIV positive by over 90%. There were some researchers from the iPrex study there, and some community leaders, but no one who actually had any experience taking this drug was on the panel.

I learned as much as I possibly could, gathered up a stack of information, and decided this could be the right prevention strategy for me.

I took this pile of data to my doctor, and we had a very frank and open discussion. We talked about my risk for HIV and my struggle to stay negative despite my recent behaviors. I explained that most people I knew who seroconverted had had a sense of fatalism involved, perceiving HIV as a “when” not an “if.” For the first time in my life I was beginning to experience that sense of HIV inevitability for myself, and it terrified me. With that information, my doctor determined it would be appropriate for me to begin using Truvada as an effective risk-reduction strategy. I began taking Truvada on July 19, 2011, and haven’t missed a dose since.

Since beginning the regimen, more information has been learned about its efficacy, and it is now believed that daily use (ie, seven days a week) of Truvada may reduce risk of HIV transmission by 99%. That is higher than condoms!

And now the question they didn’t ask on the Huffington Post: "Are you knowingly taking positive loads?"

To that I return to the world of statistics. Twenty years ago, I knew that condoms could reduce the likelihood of becoming HIV positive by 98%. Those were odds I was willing to gamble with. Today I know that daily use of Truvada may reduce my risk of becoming HIV positive by 99%. Furthermore, if my partner is able to maintain an undetectable viral load then his probability of transmitting HIV is reduced by 96% or more. Given the escalation of gun violence in the U.S., it seems I am statistically more likely to get shot right now than to get HIV.

So yes, I have had positive partners, and yes, we are making decisions that are based in health, safety, and pleasure.

That being said, I must urge anyone reading this to make sure you only begin using PrEP in tandem with a doctor. Truvada is not a casual drug, you cannot stop and start it at will without the possible consequence of your blood building resistance. Please only use this regimen after a doctor has drawn your blood, determined your HIV negative, and healthy enough to begin using this medication. If you don’t have a doctor with whom you can discuss getting fucked up the ass, then you have the wrong doctor.

Have I experienced backlash from using PrEP? You know it. The hostility from a prominent service organization has been appalling. The messages and comments left on websites where I have discussed PrEP have been degrading and insulting. Fortunately, I am trained as a psychotherapist to recognize angry fear-based thinking, which is a natural consequence of growing up and living in a homophobic culture.

Many gay men have internalized such a deep sense of shame and guilt related to sex and pleasure, that they can only react to the idea of “PrEP” with automatic and irrational attack.

At the same time, I can honestly say that the majority of feedback I’ve received has been supportive, appreciative, and quite curious.

How do you know if PrEP is right for you?  Ask yourself: If you were female, would you take a birth control pill to prevent unwanted pregnancy ? Both PrEP and birth control involve a daily and proactive commitment to maintaining one’s sexual and physical health. Both involve adherence and consistency in order to protect from an unwanted consequence And both involve potential stigma from angry and ignorant outsiders.

I encourage you to learn more and make decisions that are based in integrity, respect, and compassion for yourself and your partners.
I am open to answering any questions at Shouldless@gmail.com
Damon L. Jacobs is a Licensed Marriage Family Therapist in New York City, who specialized working with individuals and couples in the GLBT community. He has spent 16 years treating issues related to HIV/AIDS, stress management, bullying trauma, grief/loss, suicide management, care-taking fatigue, substance abuse, domestic violence, and anxiety disorders. He is the author of "Absolutely Should-less: The Secret To Living The Stress-Free Life You Deserve."

To learn more, contact Damon at Shouldless@gmail.com, or visit www.shouldless.com.

Friday, March 1, 2013

Interview Part 3: Toronto Health Promoter Chooses PrEP - "Maybe I should get a t-shirt made that says 'Truvada Whore' on it"

via Positive Lite (Canada)

Part 3 of an interview with Len Tooley, an HIV-negative gay guy who is taking pre-exposure prophylaxis. He works in Toronto as a gay men’s health promoter, HIV educator, tester and counsellor.

Excerpt:
I wish that I could be 100% certain that even if I used a condom every single time I had anal sex I wouldn’t get HIV. I also wish that condoms could be made out of a magical material that didn’t have any texture, scent, colour or substance – but I know that not all my wishes can come true!

But I’ve had to admit to myself that I’m not perfect at using condoms 100% of the time, and, because I’ve been working as an HIV tester and counsellor for so long, I know that a lot of gay men that I provide HIV testing to aren’t perfect either. And that’s not because we’re not trying, it’s because we’re not robots. I can also admit that condoms aren’t some invisible barrier that doesn’t impact the quality of my sex life at all. Condoms aren’t easy to use, and for me (but not for everyone), they make sex a lot more difficult. I wish it wasn’t so, but alas, it is.

Read the whole thing. You can catch the first and second segments of this interview at this link too.

Thursday, February 21, 2013

Derek Brocklehurst - A Year on PrEP, That's All He Wanted


After taking PrEP for one year, I found the love of my life and decided to give monogamy a try.

by Derek Brocklehurst
San Francisco, CA

I started PrEP (pre-exposure prophylaxis) in October 2011. I was presecribed Truvada "off label" before it had actually been approved for PrEP by the FDA (Food and Drug Administration.) FDA gave its approval in July of 2012.

I had an honest, open-ended discussion with my Nurse Practitioner and, without any judgment on his end regarding my frequent condomless sex practices, he said, "You would be a great candidate for this medication."

It was covered 100% by my insurance, and Gilead also offers co-pay assistance programs to cover the co-pay of the medication if you are prescribed it, so I literally paid $0 for this potentially pricey preventative.

I had zero side effects during the year I took it, and it gave me peace of mind. I was very open about my condomless sex practices with many multiple partners and, along with seropositioning, I believe it has contributed to helping to keep me HIV negative.

I think stigmatizing anything in our community is not the way to go, so PrEP should be just another option out there to help negative guys stay negative. It's also important to get regular (every 6 mos-1yr) kidney function tests to make sure it's not doing long term damage to your kids, as well as bone density tests and evaluations.

After taking PrEP for one year, I found the love of my life and decided to give monogamy a try. I stopped PrEP after just one year of daily adherence (I really never missed a dose! Every morning.)

It's always important to re-evaluate where you are at in your sexual life. If PrEP makes sense, talk to your provider and get on it! If it doesn't make sense to be taking a daily anti-viral medication that could have long term effects on other body systems, reassess and move on. I have found that honesty and communication are the best policies in any relationship: be it with my provider, my friends, or my primary lover.
 

Wednesday, February 20, 2013

Interview Part 2: Toronto Health Promoter Chooses PrEP

via Positive Lite (Canada)

Part 2 of an interview with Len Tooley, an HIV-negative gay guy who is taking pre-exposure prophylaxis. He works in Toronto as a gay men’s health promoter, HIV educator, tester and counsellor. In this part of the interview, he discusses the conversations he had with his doctor before getting a prescription for PrEP.

Excerpt:
It took about four appointments for me to actually get the prescription from my doctor. The first time I mentioned the idea he told me that before we considered it, we’d have to have a lengthy discussion about what was going through my mind when I decided not to use condoms. I told him that I wished it was that simple (I’m an HIV counsellor after all), that it wasn’t as simple as a ‘yes or no’ decision, and that I could guarantee him I was trying my absolute hardest to have perfectly safe sex. I just wasn’t succeeding perfectly.

At the second appointment (I was there for something else) I again brought up the idea of PrEP. This time he was still a bit hesitant, and told me that if he was going to prescribe PrEP I was going to have to get blood tests to test my kidney and liver functions and make sure I was HIV-negative, and then, depending on those results, we could talk about it more. I agreed, he gave me the test requisition, and that day I went to a lab and got my blood work done.

Once I knew my blood work results had arrived, I scheduled another appointment and saw my doctor. He confirmed that I was still HIV-negative and that all my kidney and liver function tests were okay. I was pretty nervous and excited. He asked me what I’d do if I experienced the side effects of the medication. I told him that I knew that only about 5% of people in studies of the drug had reported side effects, so it wasn’t too likely, but that if I did have those side effects I’d reconsider staying on it if they didn’t go away and became intolerable. Then I told him that I knew there could be longer-term side effects, but that right now it was probably better for me to go on Truvada temporarily while I feel I’m at risk for HIV, than get HIV and have to take that drug, or other drugs, for the rest of my life.


Read the rest.

 

Aidsmap---PrEP wars: debating pre-exposure prophylaxis in the gay community

via Aidsmap, by Gus Cairns

Last World AIDS Day, 1 December 2012, Online Buddies (OLB) Inc. (the company behind Manhunt.net, one of the most popular gay online dating sites in the US, and its affiliated health education site Manhunt Cares) sent out a bulk email to its members informing them of its World AIDS Day campaign to increase awareness of pre-exposure prophylaxis – PrEP.

PrEP means HIV-negative people taking antiretroviral (ARV) drugs to stop them from acquiring HIV infection. A series of trials two years ago, including the iPrEx study in gay men, showed that PrEP could prevent more than 90% of HIV infections in people who took it consistently, but also that a lot of people in the trials didn’t take it enough, or at all.

The US Food and Drug Administration (FDA) approved tenofovir plus emtricitabine (Truvada), the two-drug pill used in the trials, for use as PrEP, in July last year.

The European Medicines Agency (EMA) is still considering approval. Throughout Europe, centrally funded health systems are likely to demand more rigorous guidelines on targeting and budgeting before authorising PrEP.

In practice, uptake rates in the US have been low and not many HIV-negative men are aware of this new HIV prevention option. In conjunction with Fenway Health, the LGBT sexual health centre in Boston, and the Harvard School of Medicine, Online Buddies researched Manhunt’s users and found that even after the iPrEX study results1 were announced, only one in five of its users were at all aware of PrEP and only 1% had ever used it, though when given a description of it, nearly 80% said they potentially might.2

For those depressed by ongoing high HIV incidence rates amongst gay men and impressed by the PrEP trial results, a campaign to alert the community to the possibility of this new HIV prevention method was needed.

“One of our guiding principles is to fill critical gaps in health promotion campaigns,” says David S Novak, Online Buddies’ senior health strategist. “Normally, we spotlight a variety of different issues, but this year PrEP was the obvious thing.”



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